BEYOND WORDS – A Dialog of the Spirit

I’ve been visiting Harold (not the man's real name) as a hospice volunteer for three months now. His diagnosis is Alzheimer’s disease, and the reason he’s in hospice is that it’s quite advanced.

When I first met him, Harold could talk. That is, he had enough breath to make sounds, and he could move his lips. He’d even punctuate his comments with hand gestures and the occasional little chuckle. But very little of it came across clearly enough for me to understand.

As for my end of the conversation, I’d tell him what kind of a day it was outside, report on how the Minnesota Twins were doing, or maybe recount one of my experiences I thought might resonate with one of his. Occasionally, when he was tracking, he’d respond to something I said quite clearly, “Oh, is that right?” That was nice to hear.

I did my best. Most often that meant simply maintaining eye contact with him as
he spoke, trying to keep that faintly-received channel open. Since I didn’t want to pretend to understand when I didn’t, all I could do was nod so he’d know I was, if not understanding, at least hearing him.

Once in a while I’d make out a word or two. If I heard “brother,” I’d respond, “Oh, your brother. Uh-huh” or “I’ll bet you and your brother were quite a pair.” Anything to preserve a crack in that shell of isolation the poor man must inhabit.

      I remember vividly why I originally signed 
      up for hospice work...I knew it had little to 
      do with words.

A LOSS FOR WORDS
Harold still likes to talk, but now, at this week’s visit, he’s clearly faded…a lot. He’s gazing up at me with what appears to be the intent of speaking, but I have to look hard to detect the subtle movement of his lips. I hear wisps of air coming out of his mouth, but he can no longer make a sound.

I’m so sad for him; I know he’d once been a pretty gregarious fellow. He still had the will, but not the way. I also feel an arresting sense of gratitude. Yes, of course, simply for not being Harold, but also for the opportunity– the privilege—of being with this good man at such a vulnerable point in his life.


I’m a writer; my stock in trade is communicating with words. So this is unfamiliar territory for me. Yet I remember vividly why I originally signed up for hospice work. I felt I had something spiritual to offer. I wasn’t quite sure how to describe it, but I knew it had little to do with words.

HEARING SILENCE
So I’m sitting here at Harold’s bedside, and he’s just looking up into my eyes. It’s a little unnerving, but I feel something—I’ll call it energy for lack of a better word—flowing between us. It feels good, and I can only hope Harold feels it too.

I take his gnarly hand and hope I can convey some kind of understanding that way. I don’t know how much he can grasp, but I acknowledge how awful it must be to have thoughts ambushed like that before he can get them out. “It’s okay,” I reassure him. “I’m hearing you.”

Our hour together comes to an end. I take his hand again and ask if it’s okay for me to come back next week. He just looks at me. As I walk away, I recall the moment, just the week before, when, after I’d strained the whole time to understand a word here and there, he somehow managed to say, as plain as day, “Thank you for coming.”

Today, he says nothing. But his eyes follow me through the door.